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Epilepsy is one of the common long-term conditions affecting approximately 112,000 children and young people (CYP) in the UK [1]. About 60 CYP with epilepsy die every year in the UK [2]. Sudden Unexpected Death in Epilepsy (SUDEP) is defined as a sudden, unexpected death in a person with epilepsy, with or without evidence for a seizure preceding the death, in which there is no evidence of other disease, injury, or drowning that caused the death [3]. Incidence of Paediatric SUDEP at 1.2 per 1,000 paediatric epilepsy person-years is now acknowledged to be similar to that in adults with epilepsy [4].