Children with drug-resistant epilepsy experience regular debilitating seizures despite treatment with multiple antiseizure medications.[1] It is a life-changing diagnosis for the child and their family, requiring an adjustment to a new ‘normal’, characterised by the unpredictability of seizures and the coexistence of comorbidities[2,3] It is widely accepted that chronic illness, such as epilepsy, presents additional burdens and care needs for parents, increasing their anxiety, stress, and depression.[4,5]
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