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In healthcare, medical information should ideally be assessed directly with the patient. However, sometimes this is impossible, for example, when assessing subjective data such as health-related quality of life of very young children or in patients with dementia or with major intellectual disability. This can also be challenging when assessing psychiatric diagnoses that require thorough interview. For such cases, information from a proxy respondents can be valuable[1]. This is particularly true in the case of Sudden Unexpected Death in Epilepsy (SUDEP).