Families’ Knowledge Change in Paediatric Drug Resistant Epilepsy: A Novel Clinic Model

Epilepsy is a chronic condition that impacts over 95,000 Ontarians, of whom approximately 15,000 are children [1]. While most individuals with epilepsy can be treated effectively by a primary care provider or neurologist, an estimated 30% of those diagnosed will end up having drug resistant epilepsy (DRE), which is defined as experiencing seizures that do not respond to treatment with two or more appropriate antiepileptic drugs [2]. These children experience poor quality of life and represent a burden for the healthcare system due to frequent hospital admissions for seizure decompensation [3].

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