‘TO REVEAL OR TO CONCEAL’- Disclosure strategies in parents of children with epilepsy in India

Epilepsy is a common, chronic neurological disorder affecting children at a prevalence of 3-9 per 1000 children [1,2]. Epilepsy is an example of a concealable stigmatized identity, with visibility either on disclosure of the condition, or occurrence of seizures in public, or other indicators of the disease (e.g., drug-taking) [3]. Disclosing a child’s epilepsy to others is an extremely sensitive issue for parents as disclosure can be fraught with discrimination, rejection, restrictions and bullying.

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