Parents’ experiences of their child’s assessment on an epilepsy surgery pathway: a qualitative study

Children with refractory epilepsy (RE) experience ongoing seizures despite the use of anti-epileptic drugs (AEDs) [1]. Ongoing seizures have a negative impact upon brain development [2,3], whereas surgical intervention for certain children with RE can lead to reduction in seizure frequency [2,4,5] and improved developmental and quality of life outcomes [6-8]. Epilepsy surgery services have therefore been established with a focus on increasing access for younger children (aged five years or under) for whom it is suggested that epilepsy surgery is particularly advantageous [9].

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