Epidemiology, healthcare resource use, and mortality in patients with tuberous sclerosis complex: A population-based study on German health insurance data

Tuberous sclerosis complex (TSC) is a rare, multisystem genetic disorder, characterised by the formation of tumours in various organs, such as the brain, kidneys and skin [1,2]. The disorder is highly heterogenous and is associated with a spectrum of additional neurological or neuropsychiatric manifestations including epilepsy, intellectual disability, behavioural disorders, and autism [2–4]. Epilepsy is the most common neurological disorder in individuals with TSC and results in significant morbidity and mortality [3,5,6].

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