Reciprocal burden: Adults with drug-resistant epilepsy reflect upon informal caregiver support.

Drug-resistant epilepsy (DRE) is serious disorder characterized by unpredictable and intrusive seizures. Due to uncontrolled seizures, poor memory and cognitive deficits, family caregivers have to be relied upon for disease management and emotional support [1]. As a consequence, epilepsy is as much a focus of the lives of caregivers, as it is for those diagnosed with the condition [2-4]. Caregiving is frequently subtle and varied, both with respect to how carers identify with the role and the tasks they undertake.

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