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Convulsive status epilepticus (CSE) is associated with increased mortality, though its long-term sequelae are not clearly delineated [1,2]. Some evidence suggests that CSE is associated with motor, cognitive, and/or behavioral impairments; however, the etiology, and potentially the type of epilepsy and patients’ age are suggested to be the primary drivers of outcomes following CSE [1,2]. For patients with a history of CSE, limited evidence is available on patient-reported outcomes such as health-related quality of life (HRQOL)[1,2].