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Comorbid epilepsy is found in 22.5% of people with ID, a prevalence positively correlated with severity of ID [1,2]. The link between behavioural disturbance in people with ID and epilepsy is complex and poorly understood [3,4]. There is a paucity of research [5,6]. Seizures themselves are often more complex and subtle than in the general population [7], leading to higher rates of misdiagnosis [8,3]. Reliance on informants is another possible source of uncertainty [9]. The confidential inquiry into premature deaths of people with intellectual disability (CIPOLD) [10] found 43% of their examined sample had epilepsy.