A UK survey of the experience of service provision for children and young people with epilepsy

There has been increasing acknowledgement of the need to include patients’ experiences in evaluation of healthcare and that monitoring healthcare effectiveness from the patient perspective can be as important as using clinical outcome measures to enable quality improvement [1]. The World Health Organisation emphasises the importance of understanding patient satisfaction and responsiveness to care experiences. Patient satisfaction with aspects of non-medical care is associated with better engagement with treatment, appropriate care-seeking and understanding and retention of medical information [2].