Around the world, non-profit, voluntary, and charitable organizations support the epilepsy community, often complementing and potentially easing burden on statutory services. Many offer an information and advice helpline (e.g., [1–6]). While their structures and processes may vary, they share common goals: offering a confidential, non-judgmental space where individuals can access expert information—often on sensitive topics—receive emotional support and be directed to additional resources. Unlike traditional services, helplines can be accessed without a formal diagnosis, by individuals indirectly affected, through various ...
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