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Childhood epilepsy is a common neurological disorder of variable aetiology affecting approximately 0.5-1% of children[1]. For caregivers, management of their child’s epilepsy not only involves managing seizures within the context of home, education and leisure activities, but also administering medication, seeking clinical intervention when appropriate, and often negotiating cognitive, mental health and neurodevelopmental comorbidities[2–5]. Depending on clinical and family circumstances, caring for a child with epilepsy can involve detrimental changes to carer employment, finances, sleep and mental health[3-4, 6-7].