Challenges in the treatment of a chronic disease: A study of narratives of people with juvenile myoclonic epilepsy

Juvenile myoclonic epilepsy (JME) is characterised by generalised onset seizures, often occurring soon after awakening, involving myoclonic seizures predominantly in the arms, and typically without disturbance of consciousness [1]. Myoclonic seizures in JME start to occur around puberty [1–3]. This type of epilepsy is possibly associated with genetic factors and, if correctly diagnosed and with appropriate treatment, can be well controlled [4–6]. Treatment for JME is long term, continuous and pharmacological [7].

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